Gene Therapy (UK journal)

Gene Therapy Weekly

Clinical Trials

The American Society of Gene Therapy

American College of Medical Genetics

National Society of Genetic Counselors

American Board of Genetic Counseling

Canadian Association of Genetic Counselors

The Biotechnology & Gene Therapy Web 'Cite'

Human Gene Therapy Protocols

The Institute for Human Gene Therapy

Introduction to Gene Therapy Home Page

Office of Recombinant DNA Activities

Mutation Research Genomics Initiative

Society for the Study of Inborn Errors of Metabolism -  inherited metabolic disorders and related topics.

Debate on Major Limitations of Gene Therapy  at HGP - also numerous articles on variety of GT issues incl ELSIE

Introduction to Gene Therapy from Vanderbilt University

NIH Human Gene Therapy information for the general public (1990)

Human Gene Therapy information from the Georgetown University National Reference Center for Bioethics Literature

Gene Therapy Clinical Trials --a listing from the Wiley Journal of Gene Medicine

Scientific American Explorations: Gene Therapy

Introduction to Gene Therapy --an overview by Access Excellence

Information about the gene therapy-related death of Jesse Gelsinger 1999.

• Findings from the Institute of Human Gene Therapy
• MD Group - articles linked from their main homepage.
• Numerous links to articles --list provided by the Institute of Human Gene Therapy
• Gene Therapy: Is There Oversight for Patient Safety? --U.S. Senate Subcommittee on Public Health Hearing

Toronto Gene Therapy Network - Canada

Intl. Center for Cell and Gene Therapy (Baylor College of Medicine)

Gene Cards --a database of human genes, their products, and their involvement in diseases

Rare Genetic Diseases in Children --an internet resource gateway from NYU Medical Center

Gene Tests & Asociations

GeneTests - Genetics Laboratory Directory,   and a Genetics and Prenatal Diagnosis Clinic Directory. A one-time registration is needed for this free service (formerly Helix).

European Directory of DNA Diagnostic Laboratories --Contacts for 280 European DNA laboratories and list of services on genetic diseases.

UCSD Biochemical Genetics Test List - labs performing genetic tests - mainly biochemical

Genes and Disease --National Center for Biotechnology Information's annotated genetic disease listing

HGMP OMIM Home Page  Inheritance in Man

Genetic Conditions / Rare Conditions Support Groups --disease-based list of support groups including contact information and websites

Chromosome Deletion Outreach --an international support group for families with chromosome deletions, additions, inversions, translocations, and rings

Unique --rare chromosome disorder support group

NLM MEDLINEplus - information on hundreds of diseases & conditions

NIH Office of Rare Diseases - information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups

Directory of Genetic Support Groups - Genetic disease support groups

Gene Help Clinics --a database of expert-authored, up-to-date information relating genetic testing to the diagnosis, management, and counseling of individuals and families with inherited disorders

Gene Therapy for Human Patients: Information for the General Public

Human Genome Project Information